Friday, August 19, 2011

Stamp of Approval

Forty years ago, most of the equipment for children with disabilities were yet to be created. I have a dear aunt that had told me that when her son was little and in need of a wheelchair...they simply did not exist. Her father-in-law should be inducted into the "Grandfathers Hall Of Fame" for 'making' a wheelchair for his precious grandson by adding onto a stroller. I often think of  that conversation while ordering new equipment for Cody.

Cody uses a variety of equipment on a daily basis at home and at school. This blog post highlights some of the best. These get Cody's stamp of approval (mine as well):

Until four years ago, Cody was still in a crib. I had searched for a bed that was like a hospital bed (BUT COOLER) and found the Sleep Safe Plus bed.
The safety rail windows enable us to view Cody as he lies in bed and he can see out. The bed has motorized controls for repositioning. The ability to raise and lower the bed makes changing his diapers and clothes so much more convenient.  Before the Sleep Safe, I was forced to change him on the floor. My back is especially appreciative of the Sleep Safe bed!

Spring 2011 we made one of the best purchases for Cody.....his very own bike!
http://www.rifton.com/products/mobility/adaptivetricycles/index.html

I had received a call one day from Cody's physical therapist at school. She had place Cody onto a bike and he was suddenly Lance Armstrong. I was skeptical at first since we had tried him out on various equipment and couldn't get the proper positioning for him to access the bike effectively. This was yet another example of Cody exceeding expectations. He wasn't just riding the bike....he was having a ball!! Cody now has a bike for home and school.  Every child should have a bike!

The most recent purchase for Cody is most essential for him to have a 'voice' in this world. Cody is non-verbal. He does find ways of communicating through gestures, sounds, etc.... We've had a communication device in the past but with little success. Cody would become easily frustrated and simply turn the device off(which was humorous the FIRST time). Words can't express (perhaps I need a communication device) how thrilled we are with him utilizing his ECO 2 by Prentke Romich. https://store.prentrom.com/product_info.php/cPath/11/products_id/53
I believe his recent achievements with the ECO 2 is a result of updated technology, and his maturity.  After a month with his new ECO 2, this is a sampling of a conversation between Cody and myself.......





4 comments:

  1. Annie:

    I have lots of friends looking for "standing strollers". I know this isn't something Cody needs right now, but thought you might have an in? Platforms on wheels and the like...

    Love the videos!
    Shonda

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  2. Shonda,

    I wish I had "an in." :) are you familiar with the standing dani??? They are incredible!

    http://www.standingdani.com/

    Annie

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  3. I have a comment about Cody's "voice." My younger sister, Jean Marie, made a surprising revelation to me one day. She was nonverbal but somehow she knew about the "voice in your head." Something she did not have. You see, when you and I are reading a book silently to ourselves, what voice do we hear? Our own. Jean Marie didn't speak so she didn't have a voice in her head to listen to. That's why it was always so important for us to read to her. She could read, that wasn't the problem, but she couldn't retain what she just read because she couldn't "hear" it again in her head after she read. Amazing, huh?

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    Replies
    1. Trisha,
      Jean Marie's insight is very interesting and amazing! It's something I would have never considered. Thanks for sharing!

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