Wednesday, November 27, 2013

Thankful For Our Abnormal Normal Life

Since we are just hours away from Thanksgiving 2013, I wanted to share thankful thoughts in being Cody's mom.

I'm thankful for the countless smiles and laughs. The more that I am around Cody and others with profound disabilities, I'm struck with the pure joy that is exhibited. There is an authenticity in their love, happiness, and a contentment in the present with little regard for the worries of tomorrow. I would love to emulate any or all of these more in my own life!
Here's an example in the fun that is Cody. I showed him how to take a "selfie." You don't have to be verbal to communicate FUN!


I'm thankful for the peaceful moments. Having experienced trauma from the beginning with Cody and subsequent medical issues along the way, it makes me even more mindful and appreciative of the peaceful moments in life. I don't think I really relished in those times before. It is a gift.

I'm thankful for a sense of humor. An example is one day after a tough doctor's appointment, Cody and I went to one of his favorite fast food restaurants. A young boy came up and pointed and asked, "What happened to him?" I typically welcome those inquisitive questions but that moment wasn't a good time for me. I answered, "skiing accident." The boy seemed satisfied and walked away. Cody and I both laughed. Do I feel bad? yes, slightly but I know God understands.

I'm thankful for all the fabulous people we have met along the way that we may not have met otherwise. We've come in contact with therapists, teachers, specialists, doctors, other parents of special needs children, children and adults with disabilities, etc... Many of these folks have enriched our lives greatly.

There are countless others that I could list here but most importantly, I'm thankful for every moment as Cody's mom.

Cody allowed me to get in one of his selfies.

Happy Thanksgiving to all! The longer I live the more I realize that it's more than a historical holiday but an opportunity to remind me that thankfulness should be a mentality, a way of life.


Cody and his dad at a recent family get together. Scott was helping him stretch his legs. P.S. Go Heels!




Saturday, March 23, 2013

CP Awareness Month ~

This is a significant month. March is  Cerebral  Palsy Awareness Month and the 25th is Cerebral Palsy Awareness Day.  March 20th is also our boy's  birthday. It was by far the most challenging day in our family's life as well as one of the most beautiful. We were given the gift that is Cody.

Our family went to a local restaurant to celebrate.  I noticed a gentleman seated behind our table looking at Cody. He had a critical expression and then shifted his chair to face the opposite direction.  Because of his poor motor skills, Cody typically has difficulty controlling his saliva. Eating and drinking are also quite messy. We should own stock in a napkin company!  The man that had shifted his chair seemed to be disapproving of Cody's table manners. 

Cody seemed completely unaware but I was hurt. I remembered reading this past summer of a family in Texas that were frequent patrons of a local restaurant. It was made known to them that a family that had been seated in close proximity had requested to be moved to a different table because of their child with down syndrome. Apparently they were "uncomfortable." 

In sharing our experience with my sister the following day, we discussed how the world lacks compassion and empathy for what it does not understand. I jokingly texted her later that there was a good chance the disapproving glare may have been as a result of my poor table manners. It's all about perspective: for every negative look, comment, reaction today and in the future, there are countless positive reactions. It's always easier to remember the bad instead of the good in any given circumstance.

Cerebral Palsy may be a part of Cody and our family's lives but it doesn't define him or us completely. Everyone has strengths, weaknesses,  and "handicaps" both seen and unseen; we're all so much more than we appear.  Happy CP Awareness Month!

I love this!